30 Things about my Invisible Illness you may not know

11 Sep

30 Things About My Invisible Illness You May Not Know
I read about this meme on ButYouDon’tLookSick.com and while I’m not even really a blogger, I decided to do it as well. I post about fibromyalgia because I want others living in pain to know they are not alone.
30 Things About My Invisible Illness You May Not Know

1. The illness I live with is: I live with Fibromyalgia, Anxiety, Depression, and ADHD.
2. I was diagnosed with it in the year: Fibro: March of 2013.  I had been feeling “off” for 9-12 months before, Depression: 2005, ADHD: first grade, Anxiety: 2013
3. But I had symptoms since: Fibro: December 2011, Anxiety 2005, depression 2005, ADHD: first grade, or before….
4. The biggest adjustment I’ve had to make is: Being realistic. Realizing my limits.  Not letting the expectations of others influence what and how much I do.  I’m still working on these, though.
5. Most people assume: That I’m faking it.
6. The hardest part about mornings are: Getting out of bed. staying focused long
7. My favorite medical TV show is: House.
8. A gadget I couldn’t live without is: Laptop, ipod touch, wifi, cellphone.
9. The hardest part about nights are: Falling asleep.
10. Each day I take: Nothing for my fibro.  I take one thing for the ADHD, one thing for the Depression.  nothing for the anxiety….that turned out bad.
11. Regarding alternative treatments I: have tried chiropractic for the fibro, and it worked, i just cannot afford it.  For the others I don’t try alternative treatments.
12. If I had to choose between an invisible illness or visible I would choose: Visible.  Then people wouldn’t give me strange looks when out and about with my cane or wheelchair.
13. Regarding working and career: I currently work as  CNA, lifting people, but I am looking for a new job because my body cannot physically handle my current job.  I am looking for a desk job with limited lifting.
14. People would be surprised to know: That i’m trained as a peer support specialist, someone who has mental illnesses and helps others with theirs.  Its an on the side thing.  I also enjoy networking with people, and social media.  I have a volunteer job for GRMakers doing their social media and other things for them.
15. The hardest thing to accept about my new reality has been: Not being able to be as social as I used to be.   And not being able to dance anymore 😦
16. Something I never thought I could do with my illness that I did was:
17. The commercials about my illness: Commercials for depression make me sad/depressed.  Commercials for fibro are for meds that are uber expensive and don’t work for everyone. and they don’t talk about the fatigue.
18. Something I really miss doing since I was diagnosed is: Swing Dancing.  hanging out.  walking around the mall.  going on walks.  hiking.  having good balance (Having ANY balance!).
19. It was really hard to have to give up: My spontaneity. Having energy
20. A new hobby I have taken up since my diagnosis is: none, yet.
21. If I could have one day of feeling normal again I would: Grab my friends and head to an ammusement park and ride the rides and run have fun etc.
22. My illness has taught me: Enjoy the good days to their fullest.
23. Want to know a secret? One thing people say that gets under my skin is: “Just be happy!”  “if you pray to god it’ll get better”
24. But I love it when people:
25. My favorite motto, scripture, quote that gets me through tough times is: I don’t have one
26. When someone is diagnosed I’d like to tell them: Read the Spoon Theory on Butyoudon’tlooksick.com … share it with everyone who cares about you. Get a handicap placard – I know you CAN make it all the way to the mall from a far spot, but will you have the energy to do your errands after that? And get back to the car? AND drive home safely? Don’t wait until you get stuck, get it now … you don’t have to use it unless you need it. Also, find a way to eat healthy when you are too tired to eat … and when you fall off that horse, keep trying. Comfort food is ok for comfort but this is life, honey. And you can’t comfort yourself everyday. Living on delivery or fast food may be easy but you will feel worse. And quite frankly it starts tasting pretty lousy after a while. Save it for your WORST days.  With ADHD, learn coping tips and tricks and check out actuallyadhd.tumblr.com
27. Something that has surprised me about living with an illness is: that i can keep doing the things that need to get done, it just might take me longer.
28. The nicest thing someone did for me when I wasn’t feeling well was: Pushed me in my wheelchair when i was too exhausted to push myself.
29. I’m involved with Invisible Illness Week because: sometimes having an invisible illness makes you FEEL invisible. And that’s a horrible way to feel.
30. The fact that you read this list makes me feel: appreciated, heard, strong.


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